Holidays are on their way

The Christmas season is ramping up and while the time leading up to it, is not my favourite, I absolutely love Christmas. This year is more difficult, when I think of the dear friends lost and the trials we’ve faced. I’m going to dig deep to embrace the season and make the most of what we have been blessed with. There is always something to be thankful for.

I've been enjoying not having chemo the last couple of months.  I've recently started my oral maintenance drug called Niraparib. It's a PARP inhibitor that is supposed to help keep the cancer at bay. We are hoping it does its job. We know my cancer is not curable but hopeful to manage it as long as possible.   The drug has a long list of side effects much like chemotherapy but less severe. My immune system will be weakened again which isn't fun, but we will be cautious. Over the last week, side effects have kicked in and I’m reminded about how much I dislike nausea and vomiting. We will weigh the pros and cons of this drug over the next couple of weeks.

We are looking forward to getting our girls home under one roof for Christmas and enjoying time with some family and friends.  Exams are just around the corner for our 2 oldest and they are doing well at university and we are so proud of them. Our youngest is growing up too quickly She’s enjoying her new school and doing very well. She’s loving ringette and has started basketball. She’s missed some school and sports due to sickness, so we are hoping she’s passed most of that.

My husband is busy working and juggling a lot of extra, but as always manages smoothly. He’s taking a good break over the holidays with us. We are all happy about that. I’m beginning to figure out what is next for me. Once I’m healed and managing well with this new treatment, I will be heading back to some form of work. Not sure where or when this will happen, but hopeful something will work out.  Another adventure awaits. For now, we will enjoy the season and be forever grateful for our life we have.

To all who are struggling through this season, I send my sincere love to you. I hope we can all find our way to embrace the happy moments and be thankful for them.

Wishing you a Merry Christmas and happy holidays!

2021

 

 

 

Happy Cancerversary to us

Today is our two year cancerversary. It’s a strange day to celebrate, considering how much sadness and worry it brought. It’s a day that will forever be etched in memory, not only for me but for my precious husband, daughters, parents, in-laws, brothers and sister-in-laws. I remember the conversation we had with each of them that awful night.  We were headed into uncharted territory but one thing we did know was we had an amazing team along with us. When one is faced with what seems the impossible, having love and support helps you get through.

I’m abundantly thankful to still be here today and be doing very well. I know how fortunate I am to have come this far.  I’ve lost many friends to this horrible disease and I will do whatever I can to help spread awareness to others.

Today, I will celebrate being alive and well.  Thank you to all who helped me get to this point. It was not an easy road but worth every single step.

 

 

Tips and Advice to Help Manage Chemo from a Newbie

I'm in the midst of my chemo battle, week #12 of many. This is just advice from my experience. We are all individual in our responses to chemo and there are so many chemo cocktails that affect people differently, this is just my take. If I can help even one person with improving their side effects that is success.

1. Take your pre chemo meds  - I take steroids 12 and 6 hours in advance of my chemo treatments. Make sure you eat crackers or something light before. Set your alarm for your middle of the night pills as well.  I usually have to wake at 4am. I suggest having your meds set out and ready,  I can be pretty drowsy in the middle of the night and have woke up the next morning unsure if I even took that meds at 4am.

2. Drink lots of WATER - It is recommended to have 2 litres of water each day during and after chemo. I suggest hydrating well the day before as too. This sounds like an easy task but when your mouth starts to feel fuzzy or everything starts to taste like cardboard or metal it gets a little more difficult.  I suggest adding a little juice and a lot of ice if you can. Keep drinking the water, it helps!

3. Take your anti-nausea meds on schedule - I am on 2 different meds for nausea and I can't imagine how terrible I would feel without these in my system. Set phone alarms or have an awesome family member or friend that reminds you (my husband keeps me on track thankfully!)  You are better to stay ahead of the race instead of get behind in meds because it is harder to catch up! Trust me.

4. Find a support system -You will need help through this process. I'm not good at accepting help from others, as I'd prefer to be the helper. This was and still is difficult for me. 

You will have people (amazing people) that step up and just tell you, this is what they can to do to help and they do it.  For our family, we had so many people wanting to help us, and we really didn't know what or how to manage this. Some dear friends decided to setup a meal delivery schedule to help us weekly. It's been unbelievably helpful for our busy little family!

There will will be others who just don't know what to do but they'll want to genuinely help. Give them some guidance if you can. A simple visit or walk is helpful when you need a little time outside.

Some people will fade out of your life for a bit, that's ok.  It's not something you should be expending your energy on.  It's not easy for some people to deal with and you shouldn't take it personally, just learn and move forward.

The people you need in your life will come forward and those friendships will forever be cherished.

5. Rest and listen to your body - This is a tricky time. One day I'll feel good and be able to do most normal activities and then next day be wiped just trying to walk up 4 steps.  Listen to your body when it tells you to rest. BUT also enjoy being able to do what you can when you feel like it. 

I've had lots of people telling me to take it easy and don't overdo it. I know it's because people care but it really bothers me. I am not feeble and incapable. In fact I'm pretty strong willed and determined on good days and on bad days I crash and do absolutely nothing. That's ok!

If and when I do get sick - it's not because I've done too much it's because I've picked up a bug that my chemo saturated body can't fight.  My system will become weakened no matter what I do or eat - it's the chemo that beats me up, not my wanting to live my life as full as I can.

6. It's ok to be sad or mad - With illness comes a lot of discussion of being strong and positive.  There is so much focus on being strong that it makes you sometimes feel pressured. It's normal and necessary to have all kinds of emotions about what is going on in your body and life. Being sad doesn't make you weak.  Everyone is different. 

For me, I have to run things through my head and sometimes writing helps; while other times talking helps.  My husband and I have had some very difficult discussions recently, but we have also had some great chats about planning our future and fun times. I'm hoping for a 25 year remission/cure but I also have to plan for the other side of the coin.

Getting professional help is also something to think about. You are dealing with a lot of curve balls that have never been thrown your way and professionals can help. Not only for yourself but if you have a family, they may need it as well. Communication is key in our life, not always easy but crucial.


Don't get ahead of yourself in this journey, day by day is the best I can do for now and I'm ok with that. 

I hope this has helped. Hugs to all that are on this journey and all the best.